{"id":8204,"date":"2013-01-15T05:00:25","date_gmt":"2013-01-15T05:00:25","guid":{"rendered":"http:\/\/secularright.org\/SR\/wordpress\/?p=8204"},"modified":"2013-01-15T05:01:34","modified_gmt":"2013-01-15T05:01:34","slug":"gene-genie","status":"publish","type":"post","link":"https:\/\/secularright.org\/SR\/wordpress\/gene-genie\/","title":{"rendered":"Gene Genie"},"content":{"rendered":"<p><img loading=\"lazy\" src=\"http:\/\/secularright.org\/SR\/wordpress\/wp-content\/uploads\/2013\/01\/Gattaca1-300x192.jpg\" alt=\"Gattaca\" width=\"300\" height=\"192\" class=\"alignleft size-medium wp-image-8225\" srcset=\"https:\/\/secularright.org\/SR\/wordpress\/wp-content\/uploads\/2013\/01\/Gattaca1-300x192.jpg 300w, https:\/\/secularright.org\/SR\/wordpress\/wp-content\/uploads\/2013\/01\/Gattaca1.jpg 455w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/>Should people be allowed to see details of their own genetic information?<\/p>\n<p>Of course. <\/p>\n<p>Yet, as <em>Reason<\/em>\u2019s Ron Bailey points out in a <a href=\"http:\/\/reason.com\/blog\/2013\/01\/08\/besides-paternalistic-bioethicists-and-d\">post<\/a> linking to <a href=\"http:\/\/www.slate.com\/articles\/health_and_science\/medical_examiner\/2013\/01\/ethics_of_genetic_information_whole_genome_sequencing_is_here_and_we_need.html\">this<\/a> article by <em>Slate<\/em>\u2019s Virginia Hughes,  \u201ctimorous and condescending bioethicists and physicians\u201d insist on getting in the way. <\/p>\n<p>Hughes notes:<\/p>\n<blockquote><p>The public discussion about DNA testing tends to focus on ethical dilemmas: What if doctors find that a person\u2019s father isn\u2019t really? Should they tell a patient about a DNA glitch if it&#8217;s only occasionally linked to disease? What if, while looking for mutations that could explain a known sickness, they stumble on others that might predict late-life dementia or indicate the presence of HIV? Would adding this data to someone&#8217;s medical record affect health insurance rates? What if\u2014gasp\u2014we end up with a real-life Gattaca?<\/p>\n<p>These questions are worth talking about. But the genetics community and popular press spend too much time debating when and how the medical establishment should &#8220;protect&#8221; people from their children\u2019s or their own DNA.<\/p>\n<p>For example, many bioethicists argue that DNA glitches shouldn\u2019t be disclosed if they\u2019re ambiguous or linked to untreatable conditions. Doing so &#8220;may create unwanted psychosocial burdens on parents,&#8221; according to a commentary on newborn sequencing in the Journal of the American Medical Association.<\/p><\/blockquote>\n<p>Ah yes, <em>bioethicists<\/em>.<\/p>\n<p>They really are a useless, worthless bunch, philosopher-princelings and wannabe clergymen who hawk their insulting and condescending babble to a political class always looking for new reasons to tell people what not to do. <\/p>\n<p>Bailey concludes:<\/p>\n<blockquote><p>It is way past time for 25 or so states that have restricted the right of citizens to obtain their genetic information from direct-to-consumer companies to lift their bans.<\/p><\/blockquote>\n<p>Indeed it is.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Should people be allowed to see details of their own genetic information? Of course. Yet, as Reason\u2019s Ron Bailey points out in a post linking to this article by Slate\u2019s Virginia Hughes, \u201ctimorous and condescending bioethicists and physicians\u201d insist on &hellip; <a href=\"https:\/\/secularright.org\/SR\/wordpress\/gene-genie\/\">Continue reading <span class=\"meta-nav\">&rarr;<\/span><\/a><\/p>\n","protected":false},"author":64,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_mi_skip_tracking":false},"categories":[26,21],"tags":[550,102],"_links":{"self":[{"href":"https:\/\/secularright.org\/SR\/wordpress\/wp-json\/wp\/v2\/posts\/8204"}],"collection":[{"href":"https:\/\/secularright.org\/SR\/wordpress\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/secularright.org\/SR\/wordpress\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/secularright.org\/SR\/wordpress\/wp-json\/wp\/v2\/users\/64"}],"replies":[{"embeddable":true,"href":"https:\/\/secularright.org\/SR\/wordpress\/wp-json\/wp\/v2\/comments?post=8204"}],"version-history":[{"count":4,"href":"https:\/\/secularright.org\/SR\/wordpress\/wp-json\/wp\/v2\/posts\/8204\/revisions"}],"predecessor-version":[{"id":8228,"href":"https:\/\/secularright.org\/SR\/wordpress\/wp-json\/wp\/v2\/posts\/8204\/revisions\/8228"}],"wp:attachment":[{"href":"https:\/\/secularright.org\/SR\/wordpress\/wp-json\/wp\/v2\/media?parent=8204"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/secularright.org\/SR\/wordpress\/wp-json\/wp\/v2\/categories?post=8204"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/secularright.org\/SR\/wordpress\/wp-json\/wp\/v2\/tags?post=8204"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}