TAG | Suffering as a blessing
Credit where’s credit is due: I am not exactly a member of the Jerry Brown fan club, but the California Governor’s decision to sign his state’s cautiously drafted assisted suicide law (perhaps too cautiously: to take one example, those with Locked-In Syndrome might still be left trapped in their hell) deserves some praise, not just for his signature, but also the reasons he gave for it.
Gov. Jerry Brown of California gave a deeply personal explanation on Monday for his decision to sign legislation allowing terminally ill patients to obtain a lethal dose of painkillers from a doctor to hasten their death. When the law goes into effect next year, California will become the fifth state, after Oregon, Washington, Montana and Vermont, to enact and retain aid in dying or physician-assisted suicide laws. Many other states are considering similar laws; they ought to follow the example of these pioneers.
The California law has robust protections to protect patients from recklessly taking their own lives. Two different doctors must certify that the patient has six months or less to live before prescribing the drugs, patients must be able to swallow the medication themselves, and they must be of sound mind and not under coercion from their families. Hospitals and doctors can decline to participate.
Governor Brown, a Democrat, said that he had carefully read the opposition materials presented by a number of doctors, religious leaders and champions of disability rights and had considered religious arguments that shortening one’s life is sinful. He also consulted with a Catholic bishop, two of his own doctors, and former classmates and friends, who took a variety of positions.
In the end, he reflected on what he would want in the face of his own death. “I do not know what I would do if I were dying in prolonged and excruciating pain,” he wrote. “I am certain, however, that it would be a comfort to consider the options afforded by this bill. And I wouldn’t deny that right to others.”
Well done, Governor Brown. That said, it remains troubling to read that, even after the vote in the California legislature, Brown thought it worth considering ‘religious arguments that shortening one’s life is sinful’. Much as I might disagree with them, there are good practical arguments to be made against assisted suicide, but why, beyond a certain point in the democratic process in a nation with a constitution providing for the separation of church and state, religious arguments should be given special consideration escapes me.
There’s been a lot of talk in recent years about how ‘religious liberty’ is under attack in the US, but that’s a stance that can easily turn into an insistence on religious privilege, an altogether less praiseworthy objective. Under the circumstances, the determination of various churchmen to ensure that all Californians should be forced to submit to the prescriptions of a faith that they might not share was more than a touch ironic.
And for all the other arguments that those churchmen make, that infamous slippery slope and so on, in the end their objections are religious, based, at their core, on the argument that the rights of their God trump those of the profoundly sick, an argument made none the more palatable by attempts to elevate ‘suffering’ into some sort of sacrament.
I posted a bit about this phenomenon the other day, but clear signs of a morbid cult of suffering can be found in an article in America magazine by Jessica Keating, the program director of the Office of Human Dignity and Life Initiatives at the University of Notre Dame. It was written in response to the assisted suicide of Brittany Maynard in Oregon earlier this year.
For those who cannot see beyond the material horizon of death, suffering that does not appear to have proximate material benefit is emptied of the possibility of meaning.
Indeed, euthanasia and physician-assisted suicide are as much about unseemliness and fear of suffering as they are about death.
With the advance of utilitarian idealism and medical technology, it seems that nothing but a peaceful death will be acceptable, wherein peace is reduced to the absence of pain, emotional and physical suffering or the loss of cognitive and physical abilities.
To describe the wish for a peaceful death as ‘utilitarian idealism’ is telling. Fundamentalism is what it is.
There is another narrative that is routinely neglected or, worse, rejected out of hand, a narrative grounded in the logic of the Cross. This is a narrative in which suffering unto death can be penetrated and transfigured by the mystery of love—particularly in cases like Ms. Maynard’s, when one is surrounded by loving family and friends. This transfiguration occurs in hidden intimacies. Choosing to die early forecloses such possibilities. Had she not taken her own life with the assistance of a physician, she, like many who suffer terminal illness, almost assuredly would have been stripped bare of her abilities, perhaps even her mind. Indeed, there was nothing material for her to gain in suffering, only loss. Almost assuredly there would have been no inspiring recovery story to tell at the end. Rather, Ms. Maynard might have become unproductive, unattractive, uncomfortable. She would just have been. But she would have been present in a web of relationships. Even had she fallen unconscious, she likely would have been read to, washed, dressed and kissed. She would have been gently caressed, held and wept over. She would simply have been loved to the end.
That was a destiny that was hers to choose or to reject. ‘The logic of the Cross’, backed by coercion, would have denied her that freedom, that autonomy, that dignity, that relief.
As I said, ‘religious privilege’.
In the course of commenting over on the Corner to a list of the ‘ten best revolutionaries’ (yes, the list was as dumb as you can expect), I included an extract from Paul Berman’s excellent Slate response to The Motorcycle Diaries, a hagiographic Che movie made about ten years ago.
Some of Berman’s piece was an attempt to insert a little accuracy into the historical record, but this too caught my eye:
[T]he entire movie, in its concept and tone, exudes a Christological cult of martyrdom, a cult of adoration for the spiritually superior person who is veering toward death—precisely the kind of adoration that Latin America’s Catholic Church promoted for several centuries, with miserable consequences. The rebellion against reactionary Catholicism in this movie is itself an expression of reactionary Catholicism. The traditional churches of Latin America are full of statues of gruesome bleeding saints. And the masochistic allure of those statues is precisely what you see in the movie’s many depictions of young Che coughing out his lungs from asthma and testing himself by swimming in cold water—all of which is rendered beautiful and alluring by a sensual backdrop of grays and browns and greens, and the lovely gaunt cheeks of one actor after another, and the violent Andean landscapes.
The cult of suffering—the idea that suffering is itself somehow ennobling—has long been a feature of some of the more morbid outgrowths of Christian tradition, and it can easily be detected in some of the opposition to assisted suicide.
In the course of an article for the Boston Pilot,a nun, Sister Constance Veit, wrote:
Compassion, or “suffering with” another, manifests what is best in us as members of the human family. As Little Sisters of the Poor we often witness the extraordinary things that happen at the bedside of our dying residents — striking acts of faith, graces of personal conversion and family reconciliation and exceptional gestures of empathy on the part of our staff members.
This past winter we were hit with a particularly tough strain of the flu. Several residents succumbed to the illness, including a woman who had been caught in the downward spiral of Alzheimer’s disease for over 15 years. In his funeral homily the priest, a family friend, suggested that as Alzheimer’s progressively robbed her of all that she had enjoyed in life, he had been tempted to wonder, “Why is she still here?”
The priest had a ready response to his own question, though: despite her silence and complete dependence this woman remained among us for so long to bring out the best in her caregivers, to teach us how to love. Father’s answer echoed an insight that St. John Paul II had shared 30 years ago in his apostolic letter on human suffering:
“We could say that suffering, which is present under so many different forms in our human world, is also present in order to unleash love in the human person, that unselfish gift of one’s ‘I’ on behalf of other people, especially those who suffer. The world of human suffering unceasingly calls for, so to speak, another world: the world of human love; and in a certain sense man owes to suffering that unselfish love which stirs in his heart and actions.”
What a mystery — these suffering souls whose mission it is to call the rest of us to a more noble existence, a more loving and generous gift of self! The graces bestowed on those who care for the ill and dying parallel those received by the sick who recognize God as the Master of Life and entrust themselves to him. One of the reasons why assisted suicide is so tragic is that it would deprive the sick and those who accompany them of these important graces.
That last paragraph is, I have to say, disgusting. Sister Veit’s argument that those wrestling with the later stages of a cruel disease are on a “mission” on behalf of the rest of us, a mission that they had never asked to be on, is an expression of fanaticism, terrifying in its absence of empathy for her fellow man.
We are often to told that assisted suicide could represent a slippery slope to moral catastrophe. To read Veit’s words—and to understand what, in practice, they really mean— is to realize that we are already there.
Comments off · Posted by Andrew Stuttaford in Science & Faith
Via Andrew Sullivan we have this piece by William B. Hurlbut, Consulting Professor in the Department of Neurobiology, Stanford University Medical Center, a man of science, who is, it turns out, also a fan of the benevolently deranged Francis of Assisi.
There’s plenty in the article for those with an interest in Francis himself, but I was more interested in this:
The traditional role of medicine, for example, has been to cure disease and alleviate suffering, to restore and sustain the patient to a natural level of functioning and wellbeing. The medical arts were in the service of a wider reverence and respect for the order of the created world: “the physician is only nature’s assistant,” as the Roman healer Galen explained.
But now, armed with the powers of biotechnology, medicine has found a new paradigm, one of liberation: technological transformation in the quest for happiness and human perfection. Slowly but steadily the role of medicine has been extended, driven by our appetites and ambitions, to encompass dimensions of life not previously considered matters of health, with the effect of altering and revising the very frame of nature. Increasingly, we expect from medicine not just freedom from disease but freedom from all that is unattractive, imperfect, or just inconvenient. More recent proposals, of a still more ambitious scope, include projects for the conquest of aging, neurological fusion of humans and machines, and fundamental genetic revision and guided evolution — for transhumans, posthumans, and technosapiens.
The danger is immediately evident…
It is? Danger? This all sounds splendid, although count me skeptical as to how far we will get any time soon towards, uh, transhumans, posthumans, and technosapiens. I’m still waiting for flying cars and Moonbase Alpha (which was due sometime before 1999).
In the absence of any concept of cosmic order, where the material and the moral flow forth from a single creative source, all of living nature becomes mere matter and information to be reshuffled and reassigned for projects of the human will.
Well, that absence is what it is. Hurlbut may be uncomfortable with the consequences, but they are what they are—and they need to be faced. He may wish to believe in a “cosmic order” (a fantasy that takes many forms, in any event), but he ought not to be surprised that there are those that disagree that such a thing exists and are thus reluctant to comply with its supposed rules. But that is not necessarily cause for despair. Experience shows that humility and caution in matters of this type are a matter of commonsense, and commonsense has a way, quite often, of winning out. As, if less frequently, does kindness:
Genetically engineered featherless chickens for cheaper pot pies and leaner pigs with severe arthritis are a violation of basic kindness and courtesy.
There’s a great deal more from Hurlbut, and, much of it like the writings of Leon Kass, is, in its glorification or, at least, inshallah acceptance of suffering, as morbid, and, in its implications, as revolting as some of the more lurid iconography of Christian martyrdom. It’s sad to see such words flowing from the pen or keyboard of a doctor who will in his own career surely have done a great deal to alleviate the suffering of others. Such are the contradictions of religious faith.
And then there’s this:
[O]ne can sense a wisdom in the severity and self-denial that were, for Francis, inseparable from the source of his joy. He had rediscovered an ancient truth in the inversion of desire, not as a negation of being but as a positive passion. In the image of the Lord, he emptied himself and received all things back renewed, purified, and restored in their divine glory.
When I read that, I see only an expression of a millennial asceticism that in our modern era has found expression not in the kindly ramblings of an oddball hippy saint, but in revolution, gulag, and the emptied streets of Phnom Penh.
Compared with that, biotechnological advance is relatively risk-free…
The Wall Street Journal has interviewed “eminent bioethicist” (itself a contradiction in terms) Leon Kass. The trigger was the Gosnell trial, but it was this aspect of Kass’s remarks that drew my attention:
Dr. Kass sometimes finds himself at odds with [anti-abortion] advocates. The movement’s narrow focus on nascent life, he worries, blinds it to the fact that “abortion is connected to lots of other things that are threats to human dignity in its fullness.”
“Pursuing perfect babies, ageless bodies and happy souls with the aid of cloning, genetic engineering and psychopharmacology,” he thinks, are among the most significant of those threats.
Not that, again. Of course, we need never to forget the terrible lessons of early twentieth century eugenics, but re-read those comments and what you see emerging beneath those soothing words about “dignity” is a morbid and sentimental attachment to suffering, and a profound contempt for the human mind:
“Killing the creature made in God’s image is an old story,” he says. “I deplore it. But the new threat is the ability to transform that creature into images of our own choosing, without regard to whether the new creature is going to be an improvement, or whether these so-called improvements are going to sap all of the energies of the soul that make for human aspirations, art, science and care for the less fortunate. All of these things have wellsprings in the human soul, and they are at risk in efforts to redesign us and move us to the posthuman future.”
And the corollary of this paranoid, mystical nonsense about a “new threat” is that the state, aided and abetted doubtless by a self-appointed (and sometimes taxpayer-funded) coterie of wise men, will decide that they know best where scientific inquiry should go.
Galileo, phone your lawyer.
Stephen Budiansky appears to be channeling the idiocy of Leon Kass (the “suffering is good for you” guru who chaired George W. Bush’s grotesque tax-payer funded “bio-ethics” boondoggle) in the latter part of this attack on Steve Jobs’s attempts to combat his cancer:
With that same petty and narcissistic fixation that we can control everything in our own personal destiny—and for no other ends than our own betterment—Jobs, we read, first attempted to treat his cancer with mumbo-jumbo fruit juice diets and psychic spiritualism, then by ultrascientifically trying to become his own medical authority, spending $100,000 to have his DNA sequenced, acting altogether as if no one had ever had cancer, or at least such an important cancer, before.
Jobs’s turn to mumbo-jumbo was a depressing reminder that superstition is no respecter of IQ, but it was a choice, however foolish, that he was entitled to make, and it was a choice that he made under the sort of threat that could easily bring out the irrational in anyone. Some sympathy is called for. As for deploying his money on bespoke science in the later stages of his battle against a terminal disease, that seems perfectly reasonable. Why go quietly into that dark night?
Especially at the age of 56.
Andrew Sullivan quotes from a (paywalled) article by New Yorker writer Aleksander Hemon, whose daughter was diagnosed with cancer at 9 months old. He quotes the terribly bereaved father as saying this:
One of the most despicable religious fallacies is that suffering is ennobling—that it is a step on the path to some kind of enlightenment or salvation. Isabel’s suffering and death did nothing for her, or us, or the world.
Now let’s flash back to Crisis Magazine’s Barbara Nicolisi and her reference “to the infinite blessings that come through suffering…By removing suffering and the meaning of suffering from our culture, we make the final step in denying and defying our creature-hood.”